Reproducibility, Transparency, and Data Ethics

How and when to share data, and when not to

Lars Vilhuber

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labordynamicsinstitute.github.io/reproducibility-ethics/presentation/ (PDF)

Reproducibility, Transparency, and Data Ethics

How and when to share data, and when not to

Lars Vilhuber
Cornell University

Overview

The question

How do you create transparency and credibility when you cannot share the data you use?

  • What kind of data can you share?
  • Strategies for data collection, data use, and data sharing
  • Relevant if you collect your own data, or if you use confidential data

Roadmap

  1. When can you share data – and how do you know you cannot?
  2. How do you know you have data you cannot share?
  3. Methods to make non-shareable data shareable
  4. Methods to publish data securely, with controls

When can you share data?

When can you share data?

  • How do you know you can share data?

How do you know you cannot share data?

  • Licenses and data use agreements
    • Example 1: PSID
    • Example 2: Demographic and Health Surveys (DHS)
  • Institutional review board (IRB) restrictions
  • Confidentiality agreements
  • Legal restrictions (🇪🇺 GDPR, 🇧🇷 LGPD)

Data ethics

Do you have data you cannot share?

Separate from Day 1

Verify on Day T-1

A recent message from an author

After having been provided with the LLM-produced PII check:

We have removed the PII and resubmitted the deposit for your review. Here’s a brief overview of the changes we made for reference:

  • Removed PII: We removed the “name” field, subject IDs, and all location data (latitude/longitude).
  • Deleted unused files: We removed files that were not used in the analysis and would have required PII to merge with the rest of the data.

Discussion

What could they have done earlier?

Making non-shareable data shareable

Methods

  • Data de-identification
  • True data anonymization
    • k-anonymity
    • differential privacy
  • Aggregation and summarization
  • Synthetic data generation

k-anonymity

Try it yourself:

Open In Colab

Open In Colab

Differential privacy

Publishing data securely, with controls

Methods to publish data with controls

  • Data repositories have mechanisms
  • Journal policies require “5 years retention” – how do you ensure that?

Flip it

You are the licensor!

See also

When data are not shareable

The end!

Source